Research project - Co-adapting The Day-Doc for people with life-limiting conditions
Co-adapting The Day-Doc to support people with life-limiting conditions to have a bigger say in their care and support
This project aims to co-produce a practical tool that enables hospice services to better understand and respond to the views, experiences, and preferences of people with life-limiting conditions who communicate non-verbally. To achieve this, the project will adapt and further develop The Day-Doc, an existing co-produced tool originating from Ned Redmore’s WELS PhD research and currently being advanced through a WELS Postdoctoral Fellowship with funding from Autistica.
The Day-Doc was developed to support Day Services in meaningfully including people with profound learning disabilities in decision-making and care planning. The proposed adaptation has been informed by engagement with St Oswald’s Hospice, which has identified the tool as a valuable opportunity to strengthen person-centred care and ensure that the voices of people who communicate non-verbally are recognised and acted upon. St Oswald’s Hospice is committed to supporting the development and implementation of the project, recognising its potential to improve experiences and outcomes for people with life-limiting conditions.
Open University
Project lead:
Ned Redmore, Open University
03/11/2025
The adaption of The Day-Doc will involve hospice health and social care staff, family members, and people with life-limiting conditions, as well as hospice organisations across the north of England. The project aims to develop:
- A tool hospices can implement to better include this group in planning, delivering and evaluating their care and support
- Plans for a funding application for a project to conclude the tool’s co-development through research with people with life-limiting conditions who primarily use non-verbal communication.
- Plans for the development of a free OpenLearn training course on how to use the tool.
Qualitative Interviews