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DisDAT Contacts and Reference


DisDAT is constantly evolving and we welcome comments from users.

  • Manager of the Northumberland Physiotherapy Service (LD). Northgate Hospital, Northumberland Tyne & Wear NHS Trust

  • Macmillan Nurse for People with Learning Disabilities, Northgate Hospital, Northumberland Tyne&Wear NHS Trust

  • Consultant in Palliative Care Medicine, St. Oswald’s Hospice; Newcastle upon Tyne

  • Regnard C, Matthews D, Gibson L, Clarke C, Watson B. Developing and validating a clinical tool to assess distress in people with profound communication problems. European Association for Palliative Care, 3rd Congress. The Hague, April 2003. [Poster]

    Regnard C, Reynolds J, Watson B, Matthews D, Gibson L, Clarke C. Understanding distress in people with severe communication difficulties: developing and assessing the Disability Distress Assessment Tool (DisDAT). J Intellect Disability Res. 2007; 51(4): 277-292.

    Regnard C. A pain tool for people with communication difficulties is no closer. Clinical Medicine. 2007; 7(1): 89-90. [Letter]

    Gibson L, Mathews D, Regnard C. Distress may be hidden but it is never silent!
    Journal of the Association of Practitioners in Learning Disabilities, 2008, 24(1): 5-8.

    Gibson L, Matthews D, Regnard C. Message received? Learning Disability Today. 2010; 10(8): 24-25.

    Jordan A, Regnard C, O’Brien JT, Hughes JC. Pain and distress in advanced dementia: choosing the right tools for the job. Palliative Medicine, 2011; 26(7): 873–878