DisDAT contacts and references


DisDAT is constantly evolving and we welcome comments from users.

Lynn Gibson

Volunteer Trainer, St. Oswald’s Hospice


Dorothy Matthews

Macmillan Nurse for People with Learning Disabilities, Northgate Hospital, Northumberland Tyne & Wear NHS Trust. Telephone: 07766 800461 / 01670 394808


Claud Regnard

Honorary Consultant in Palliative Care Medicine, St. Oswald’s Hospice, Newcastle upon Tyne and Volunteer Trainer, Wirral St. John’s Hospice, Clatterbridge, Wirral



Regnard C, Matthews D, Gibson L, Clarke C, Watson B. Developing and validating a clinical tool to assess distress in people with profound communication problems. European Association for Palliative Care, 3rd Congress. The Hague, April 2003. [Poster]

Regnard C, Reynolds J, Watson B, Matthews D, Gibson L, Clarke C. Understanding distress in people with severe communication difficulties: developing and assessing the Disability Distress Assessment Tool (DisDAT). J Intellect Disability Res. 2007; 51(4): 277-292.

Regnard C. A pain tool for people with communication difficulties is no closer. Clinical Medicine. 2007; 7(1): 89-90. [Letter]

Gibson L, Mathews D, Regnard C. Distress may be hidden but it is never silent!
Journal of the Association of Practitioners in Learning Disabilities, 2008, 24(1): 5-8.

Gibson L, Matthews D, Regnard C. Message received? Learning Disability Today. 2010; 10(8): 24-25.

Jordan A, Regnard C, O’Brien JT, Hughes JC. Pain and distress in advanced dementia: choosing the right tools for the job. Palliative Medicine, 2011; 26(7): 873–878

Regnard C, Volicer L, Van Den Noorgate N et al. Detecting pain or distress in people with dementia: an appraisal of two strategies. European Journal of Palliative Care, 2015; 22(3) 110-3